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    <lastmod>2020-06-23</lastmod>
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      <image:title>Announcements - Governor General’s Gold Medal and Gordon A. MacLaghlan Prizes - 2020 Convocation Prizes, McGill University</image:title>
      <image:caption>My research on the ethical, legal and social implications of sharing children’s genomic data was awarded the 2020 Governor General’s Gold Medal and Gordon A. MacLaghlan Prizes for best dissertation in the biological and health sciences. Read more about the convocations prizes here and my reflection on the role of diversity in academy here.</image:caption>
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    <lastmod>2020-06-23</lastmod>
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      <image:title>Announcements - Are differential privacy approaches to health data sharing legal? - Crypt4GH and the Law</image:title>
      <image:caption>Genomic data is inherently identifying and can reveal sensitive information about the health of individuals. Broad access, use and exchange of genomic data, however, is vital to progress in understanding etiologies of human disease. There is need therefore to ensure genomic data from individuals are kept secure, while simultaneously making it readily accessible for research. Crypt4GH, a container format developed at the European Bioinformatics Institute prevents unintended disclosure of sensitive information by storing genomic data in an encrypted state at all times. Genomic analysis tools or libraries can directly access the data from anywhere in the world in the same way as unencrypted files, and with no changes to existing workflows. While Crypt4GH affords data confidentiality, integrity and authentication from technical standpoints, its compliance with European and American data protection regulations has not been formally assessed. Without such assessment, it is unclear whether Crypt4GH can legally be used to support scientific collaboration via secure data exchange between these two leading jurisdictions for genomic research. My proposed Life Science Exchange grant will contribute this comparative regulation scholarship. It will also provide new methodological training in modern cryptography and tool development to strengthen a growing collaboration between EMBL-EBI and the Stanford Center for Biomedical Ethics in genomic data security research.</image:caption>
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    <lastmod>2020-06-23</lastmod>
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      <image:title>Announcements - Harmonizing standards for data access review committees - Data Access Committee Review Standards (DACReS)</image:title>
      <image:caption>The Regulatory and Ethics Work Stream (REWS), in association with Data Use and Research Identities Work Stream (DURI), propose to develop procedural standards for data access committees that facilitate consistency, effectiveness, and robustness of reviews for data access requests to genomic and health-related data. Read more about and join our efforts!</image:caption>
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    <lastmod>2020-06-23</lastmod>
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    <lastmod>2022-11-04</lastmod>
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      <image:title>Philographics</image:title>
      <image:caption>Extropy by Genís Carreras. Part of a larger series of designs, Philographics, that explain big ideas in simple shapes. Girona, Spain</image:caption>
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      <image:title>Philographics</image:title>
      <image:caption>Eternalism by Genís Carreras. Part of a larger series of designs, Philographics, that explain big ideas in simple shapes. Girona, Spain</image:caption>
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      <image:title>Philographics</image:title>
      <image:caption>Humanism by Genís Carreras. Part of a larger series of designs, Philographics, that explain big ideas in simple shapes. Girona, Spain</image:caption>
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      <image:title>Philographics</image:title>
      <image:caption>Empiricism, by Genís Carreras. Part of a larger series of designs, Philographics, that explain big ideas in simple shapes. Girona, Spain</image:caption>
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    <lastmod>2022-10-30</lastmod>
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      <image:title>ELSICon2022 - Presentation at ELSICon 2022</image:title>
      <image:caption>Data access Committees: crucial gatekeepers with inconsistent rules?</image:caption>
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      <image:caption>Feminism by Genís Carreras, a graphic designer, illustrator and author based in Girona, Spain.</image:caption>
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      <image:caption>Empiricism by Genís Carreras, a graphic designer, illustrator and author based in Girona, Spain.</image:caption>
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      <image:caption>Altruism by Genís Carreras, a graphic designer, illustrator and author based in Girona, Spain.</image:caption>
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      <image:caption>Optimism by Genís Carreras, a graphic designer, illustrator and author based in Girona, Spain.</image:caption>
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    <lastmod>2026-02-02</lastmod>
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